This is an essay I wrote a few years ago narrating one experience during my work as a counselor intern in Atlanta Georgia.
Every time I eat a chocolate cake with cherries, I think of Robert. I met Robert in 1994 while working as a mental health intern providing counseling services and support to those who were either infected with the virus that causes AIDS or who were diagnosed with AIDS.
My interest in learning about AIDS began in November of 1991 when my daughter Cindy telephoned and said “Dad, I have AIDS.” In what Joan Didion describes as an ordinary moment when life changes, my life changed forever. At the time, I was 55 years old, committed to beginning a new career, and a student in college studying psychology. After recovering from the distress and anguish that Cindy’s disclosure caused, I immersed myself in an effort to learn as much as I could about the disease. I welcomed the opportunity in 1994 to participate in an internship in Atlanta with Positive Impact, an agency providing mental health services to the HIV/AIDS community. I had faith that if I helped someone in Georgia, someone would help my daughter in Utah
Robert, a forty-two year old man living with Walter, his partner of a few years, was an early client during that internship. While Robert lived openly as a gay man for much of his adult life, Walter, a retired college professor, had foregone any open or serious intimate relationships until after completing his career. Neither of them was aware of Robert’s HIV status until Robert became ill.
Our early meetings took place in the agency counseling offices and then were continued in their home and eventually in the hospital as Robert’s health deteriorated. As we worked together over the months in this heavy emotionally laden atmosphere, gradually a meaningful three way therapeutic relationship developed.
The treatment priority was to help Robert as he moved toward death experiencing many of the feelings described by Elizabeth Kubler-Ross in her landmark work, On Death and Dying. Since this was before the development of medications that transformed this illness into a more chronic disease thus prolonging the lives of those carrying the virus, there was a feeling of inevitability about Robert’s prognosis. We addressed many personal issues, not the least of which was Robert’s concern about his eternal well being and his relationship with God. He felt an affinity for the Catholic Church but was conflicted about the Church teachings regarding homosexuality. He also hungered for the acceptance from his family that they never offered him as a gay man.
Robert was grateful for the love and support he received from Walter, and over the weeks and months Robert gradually reached some resolution of his conflicts and moved toward a position of acceptance of his situation. On more than one occasion he had the wisdom and kindness to tolerate this beginning therapist’s awkwardness and even clumsiness. Belying the seriousness of his situation, he often displayed a sense of humor, allowing us to laugh at each other as we shared these few steps of our life’s journey. Of the many gifts Robert gave me, one was to permit me to be a witness to his courage, his vulnerability, and the strength of his human spirit, particularly during our last session together before his death.
By this time, the disease had taken its toll. Robert was in the hospital, sleeping lightly in his bed, when I arrived for our regular weekly session. He slowly woke as I entered his room and we chatted briefly about the day’s events, his physical weakness obvious. While lying on his back he would lift his knee in an attempt to ease the pain and find some comfort. Just the act of bending that knee was an exertion.
While we talked, an aide came in with a white bag containing a piece of maraschino cherry chocolate cake tightly encased in Saran wrap. Being the helper I was, I began to take the cake out of the bag with the intent of feeding him. Robert, as emphatically as his condition allowed, let me know he didn’t want my help. I gave him the bag and over the next 20 or 30 minutes he removed the cake from the bag and with great effort struggled to loosen the tightly clinging Saran wrap. As the cake became accessible he would break off little pieces and lift them to his mouth. Robert created a glorious mess as chocolate crumbs scattered over the previously white and spotless sheets and floor.
While eating, Robert occasionally bit into a succulent maraschino cherry, a smile spreading across his face, his lips glistening as traces of juice from the cherry escaped his mouth. He savored the sweet flavor and moisture of the cherry pausing to enjoy the happiness and near joy he found in that precious moment! After resting to regain his strength, he continued his heroic task.
When finished, Robert lay back exhausted and fell into a light sleep. After I quietly cleaned up his bed, I held his hand for a few moments. Our visiting time up, I tapped him lightly on the shoulder and softly announced that I was leaving. He opened his eyes, looked intently into mine, smiled, and squeezed my hand affectionately. In a moment, reminiscent of the moment that I had during my last meeting with my terminally ill father years earlier, our eyes and our touch conveyed what I understood to be our last goodbye.